where was the late Dr Wing for 20 years?

This Daily Telegraph obituary to the recently deceased inventor of the term Asperger Syndrome, Lorna Wing is staggering and baffling, quite angering. It quotes her claiming that her first use of the term in a scientific paper in 1981 opened a Pandora's Box. Over the next 20 years there were 900 published papers on it, including the first diagnostic criteria proposed in 1989 by Stephen Gillberg.

If Wing an academic voice with such effective impact as this, why couldn't she stop it taking 20 years for the condition to become widely known of? It is a too shattering thought to cope with. In the meantime, we were still living out lives not knowing of it, without the back-up and fellowship of an aspie scene, missing out utterly and tragically if we died during that time, and getting into avoidable life troubles including getting into poverty in the right wing neocon economy. Adolescent psychiatry was missing AS and still wrecking lives applying oppressive conformist agendas of personal change that AS proves wrong, and by it leading to neocon economy troubles too. The Enyclopaedia Britannica was still describing autism as Kanner autism with 80% of subjects learning disabled, I remember that from the period when I was beginning to notice the was attention on autism linked to childhood problems, in the years before I discovered modern aspie awareness in 2002.

Where were you left in the neocon world of 1989 if you heard nothing of what Gillberg was doing, and you would never cross the path of a fortuitously well informed and open minded psychiatrist after an adolescent service had already in 1983 acted totally obliviously to autism towards your school crisis?

Wing's experience in the world of academic papers does not match at all the experience of real society and real aspies outside it. She must rationally have realised there were many unreached all through those unbearable lost 20 years, when she made that comment. Why never give us the support of being more angry about that? An urgent social change should just progress with ever so slow effete composure through doctors and the cases that chance across their paths?

Maurice Frank

Don Weitz's 25 reasons why psychiatry must be abolished

www.antipsychiatry.org/25reason.htm Slightly revised version of the original written in Spring 1998. Invites all to SNOWBALL, COPY AND PUBLISH THIS STATEMENT INCLUDING THE NOTE. NO COPYRIGHT OR PERMISSION REQUIRED.

If it is objected that psychiatrists are now diagnosing aspies, they are using a piece of modern knowledge whose emergence psychiatry much slowed and delayed and that undoes lots of what psychiatry said and did. Critical psychiatrists can bear the job title and move away from the practices of psychiatry.

This was shared on the blog Psychiatric Survivors Resources.
Thomas Leonard is a local friend who has researched bad effects of psychiatric medications that are used too frequently. Our fear is always of unrecognised autistics, who got caused up with psychiatric treatment instead, still suffering that physically harmful pseudoscience. www.scotland.gov.uk/Resource/0044/00448708.pdf‎ This is his submission, number MHB108, on the presently proposed Mental Health Bill.

Have you heard the great news that Switzerland has banned ECT? The Irish Republic also is abolishing giving it against a patiennt's will. There is an awareness ahift about its nonsensical and serious effects.

Dear Luise

wp.rxisk.org/written-on-water/

The story of an aspie girl in Denmark who was slightly too old to be diagnosed in childhood in the 80s, younger than most of us, who was medically murdered by an irresponsible self-perpetuating chain of ever intensifying mental health drugging. Written by her mother. Taken up by American publisher Jorvik, perhaps from e-book impact first.

Trans Pacific Partnership

https://stopthesecrecy.net"

Site of a Canada + US based campaign worried about, and organising against, the proposed Trans Pacific Partnership agreement. Among other things claimed to override national laws, it would be about controlling and censoring the internet, making ISP site hosts take down sites. as we know from the deportation of Talha Ahsan, what goes on in web hosting that takes place there affects web use here.

How much difference will it make, when site hosting comapanies like 1&1 self-censor sites already without caring about the background situation's fairness? Which is why blogs are popular and an important alternative to sites.

consumer action

ANS's projected writing on consumer issues is an opportunity to effect a lasting empowerment of us in consumer situations, through open record of the problems that can happen. We should build up some sharing with each other, through ANS, of consumer pitfalls. The resulting responsibility for autism workers to be on guard for them for the folks they work with, helps also the independently living aspies who don't have any workers, because the whole scene has to respond to what is seen can happen.

*If you should buy a bed, avoid any with joints held together by a part called a "dowel", which is a silly flimsy wooden pin a few centimetres long. They are a ridiculous design, because they are made to carry too much weight and they are not substantial enough to do it. they can snap easily, When they do, the whole structure is unusable because half the dowel is left stuck in flush the hole preventing reuse. So see what all the joints are held together by, make sure they are not dowels. Don't ignore any joints where you can't see what holds them together, dowels are likely to be hidden from view because both ends of them insert into a hole. The bed I bought not knowing about dowels I succeeded in getting returned and refunded. A dowel snapped when attaching an end part to the bed's main body, within 2 hours of receiving the bed! They were going to send a whole replacement end part, what an expense for them to have to do that because one small piece of wood snapped. I asked them how they could guarantee that what could snap would not snap again, how in that case the structure could be safe to use, and how expensive would it then be for them to have to keep sending large new parts repeatedly? Unanswerable. I did not have to use trading standards to actually chase them, the company knew I had made them aware of these questions, that was enough. Returned, at cost of an extra delivery outing for them: they had to take it back just to avoid admitting the rest of their stocks of it should not be sold, for it was surely physically worthless to them to take back the actual bed.

*Now, having ANS's consumer writing to cite in my flyers is helping me respond to a particularly bad bus issue. It concerned a council supported service, the 63 Queensferry to Hermiston. That they can leave you for an hour then change their mind about putting on any replacement bus, when one breaks down, it happened with the 0830 first morning bus from Queensferry on Mar 19, is a serious enough failed standard for a supported service they are paying them to run, that the council transport office is chasing them for an explanation. The community council's interest is secured, quite properly, in the prospect of not renewing the support contract for that route with the same company if it defends and does not show measures guaranteeing to eradicate, the practice of leaving passengers misinformed for an hour. But the issue should not be just left until the contract renewal comes up top save bothering. It affects passengers now. To make a significant number of potential passengers living along the route know that this happened and is what they can expect, both is what the bus company deserves and puts a proper pressure on the council for more immediate action. So how can you create some passenger awareness? By putting a flyer around!

Headed:

63 BUS WASTED AN HOUR OF PASSENGERS' TIME.

That is a strong consumer action. I wrote why the council needs to bother:

" This not an innocent consequence of technical problems. To mislead passengers for an hour, kept there awaiting a provision that is then not provided, is a chosen avoidable malpractice. Meanwhile, further down the route folks' morning bus never turned up. Not for the first time. This was why.

Queensferry community council indicates the council support for running the 63 route is due for recontracting in the autumn. For public health, against getting tension and raised blood pressure and strokes from risking this experience too often, the council must not wait until autumn to take Horsburgh off all its supported routes. "

Maurice Frank

Our website is here not there.

Elas's website is now aspergersnet.wix.com/elas.
But the former site is still up and taking time to stop coming higher than the new site in google, because of old links still pointing to it. But it's a broken uncontactable site so we can't put a link into it to the new site. Ain't it frustrating when such blooming chaos makes you harder to find?

a famous aspie does not mean all is right for us.

Let's see. You've come for a look at what aspies are all about because you heard the news about Susan Boyle? Splendid: here's what the media should be telling you. Are they?

• Our heightened physical sensitivities, including to fabric and heat, are biologically incompatible with dress codes and make them an assault on our physical wellbeing. Our existence abolishes all work dress codes and school uniforms. This has been known for years and the big charities have not been choosing to push it.
• Because some aspies find it easier to focus on the written word than the spoken, there is a correlation between aspies and child authors. There is a succession of books by aspie child authors, and there is a child cruelty offence done in long history of big charities' total avoidance and failiure to publicise that there are WRONGED child authors, like me, whose chance to write was destroyed by harmful school pressures and homework.
• With the big charities' big failings to speak for us where needed, you can see how seriously we have needed the voice developed for us, to contribute into professional awareness and policymaking, by the AUTISM NETWORK SCOTLAND, developed out of Strathclyde University and now a part of the national strategy. It's invaluable, and its creation is the great success of the scene in Scotland. So IT NEEDS COPYING IN EVERY COUNTRY. If you are outside Scotland do you think your aspies deserve not to have any ANS?
• The NAS is to be complimented on attending properly to striking off its contact list a bent autism legal service that advised me to surrender in a dispute with a council tax malpractice where I was in the right by statute law and won. There needs to be a media consumer exposee of bent services that will prey on their clients instead of stand up to councils - you want to know more, you need it publicised.
• Likewise you want to know that aspies' local groups can't be corrupted and seized control of by malpractisers bent on hushing up emotional abuses, as happened to a group near us, defunct since stood up to by an earlier post on this blog describing its malpractises: 28 Feb 2011, Invitation to an autocratically restricted group's members to escape it and join us.
• It's only the same common sense that all the details should be published of the ways we have been harmed by schools and by child psychiatry. Aspie kids not safe until these things stopped, and how do you stop them unless you have heard widely what they are? In a safely non-deletable way on paper: for it's no good putting them in an Amazon e-book where the site's lawyers reserve a power to turn round and say, no no no, delete to be on the safe side. So the media are turning their backs on child safety unless they read this and chase after these things' publishing.
• Where competitive jobsearch utterly has never worked for us, the approach that works is to have aspie employment services who talk through both our strengths and our limitations with an employer to work out a working niche for us. But more ethical accountability upon these services is needed, to prevent the malpractice of them turning round and claiming that a third party problem that arises after you are in a job is not in their remit to deal with. By obvious definition, a remit to support employment automatically includes any problem that affects the work's doability or the work environment's justice in any way. This an item I am holding Edinburgh's new local Autism Plan responsible to put right locally.

Maurice Frank