Showing posts with label vulnerability. Show all posts
Showing posts with label vulnerability. Show all posts

Monday, September 14, 2020

stand with "Neuroclastic" site's fight for Osime Brown against global apartheid cruelty

Worse than Prison: immigration detention could kill Osime Brown.

Neuroclastic is an awful sounding word I hope won't catch on, + name for a site. Wish it had defied our scene's policers of language, not let them push it to change to this name.

Far more important than that, extremely morally important + pressing, it is trying to act as the spectrumite scene's focus to fight against global apartheid's arbitrary racist destruction of a spectrumite life. Namely, the atrocity of deportating to Jamaica an autistic man who has no connections or sources of support there, has lived in Britain since age 4.

When folks are deported, they are usually taken through customs at the destination country and then left at the airport. From there, most often, it’s on them to fend for themselves. In this case an autistic young man with high support needs, PTSD, and a severe heart condition. In advance of which, getting moved to an immigration detention prison on Oct 7. Read the article.

Evil people habitually
  • - are noncommittal
  • - use the word "unfortunately"
  • - talk rhetorically of reality
  • - call moral issues grey
  • - say they would rather blot them out of thought

#globalapartheid #autistic #OsimeBrown #deportation

Tuesday, November 29, 2016

Fairness: the vulnerability law, What to expect

The law of vulnerable adult groups covers us ethically, it establishes that we must not be taken advantage of, financially, or emotionally, by anyone engaging in any type of support relation with us. Any support relation, that could be a formally employed or charity placed support or aspies showing each other support in the self organised scene.

Oh so nothing bad or hurtful ever happens in an autism service? ... obviously not so, but all bad happenings are breaches of vulnerability, the protection against them is there notionally and conceptually. Its enforceability in practice is what needs building stronger. The defined duty to vulnerability includes to prevent corruption, and what prevents corruption is transparency and accountability. So all losses of direct voice and accountability for aspies about service issues are breaches of the vulnerability law capable of contributing to suicidal feelings in persons made more vulnerable. Hence structures like ANS and regular participation in the autism local plans can never be taken away. ANS's imminent issue of a book compiled from a spread of ordinary aspie life experience, An Ordinary Life Too, will greatly strengthen the body of facts that establishes this. It will advance the accountability over uncorrupt protection of vulnerabilities, that comes from strengthening the claim of permanence upon these participative structures.

What does this mean you can expect in Elas, and any Asperger society self-organised independently from the problematic big charities?
  • You are among folks who know it would be liably against the vulnerability law ever to turn socially corrupt and backstabbing to escape from answering a fairness issue, like the former Phad charity in Fife did which led very quickly to its break-up and demise in 2011 a bad outcome for all.
  • Fairness is never an obsession. Fairness is never called an obsession, because fairness is a red line ethic, and red line ethics are never obsessions.
  • For any fairness issue in your life that affects your relationship with any other members, e.g, something which their own invitation involved you in and resulted in an unfairness.Your pursuit of it, time unlimited, will automatically have the reliable solidarity and backing of the rest if the group. No one will ever dismiss it as an autistic rigid thought pattern or obsessive.
  • You will never accidentally catch any member doing that when they think you are out of hearing. You will never be let down by a friend with a long back period of discovering this way that they were never real.
  • You will never find the group dug in to stay noncommittal about your fairness issue.
  • You will never see this include a member refusing to reverse a serious mistake that had worsened the wrong, such as the mistake of apologising to the party that wronged you after being lied to by them.
  • You will never see the group suspend a normal routine of going for a drink after meetings, and instead all hasten home uncomfortably, by reason of wanting to avoid the issue.
  • You will never hear anyone express in blunt words and a cutting tone of wordly-wise macho boredom the emotionally abusive view that you may have to live with a social injustice unsolved.
  • You will never hear anyone argue that fairness to you should fall in the greater interest of the group.
  • You will never find that the group get sick of the subject and start to sanction or socially reject hearing about it, when that leaves you with them expecting you to live in acceptance of it.
  • You will never hear anyone use the word "unfortunately" as a weapon for any of these maltreatments of you.
  • You will never see another member continue to belong to, and hear him keep mentioning its place in his social life, anything which has wronged or unjustly excluded you, if he has said nothing about efforts on your behalf to change that. Particularly if his own invitation had led to the wrong happening in the first place.
  • You will never have anyone believe that you should live in acceptance of, and stop fighting, a wrong which has not happened to them.
These are not points that any autism group, any group in any support scene, can discuss and decide not to accept. You will not suffer these things because the group will ensure conscientiously that each other know, that it would break the vulnerability law, with many potential lines of liability, for any of them to exploit anyone's vulnerability by doing any of these unfair unsupportive things to them. They are all acts of emotional abuse, for they betray and kick away wellbeing and result in exclusion experience. Hence they all risk, as is well established illegal, well-motivating suicides by it. They are all actions whose breach of the vulnerability law is serious enough that they risk life. The members of every aspie group have a duty to ensure each other's awareness of this, to be vulnerability compliant.

You do not have to be a suicide risk to have this protection, e.g, you may be articulate enough with writing to fight back, but the group will know that if they wrong you they cause suicidal ideation in a less articulate person who sees it happen and encounters any similar wrong, now or later. So, because the group dares never wrong that person, they dare never wrong you either. Backing for total literalist fairness is your claim of right.

Maurice Frank

Sunday, April 24, 2016

The item the customer chooses is the item the customer chooses

I no longer go to Holland + Barrett. Not that I went there much, give how dry in the mouth most of their stuff is. I have returned my points card to them, repudiated and cut in half, with a strongly worded note and email.

It's not because there was anything wrong with a bought item - in my view. It's actually the offensiveness of the opposite situation - the till cashier having the arrogance to insist on changing an item that I thought was okay and did not want changed, and when I was in a hurry. It was nothing more than a single vegetarian scotch egg! For which, their shop in Dunfermline Kingsgate mall, on the cashier's opinion not mine that it was "all broken", ignored that I was in a hurry and persisted in expecting me to wait tor them to change it, until instead I stormed out not buying anything. As it was labelled reduced and the replacement would not have been, they were also attempting a rip-off by this.

As I have told H+B: For customers in some vulnerable social groups, who I have experience of working with - that's not only autism - changing their chosen purchase for another against their will would constitute illegal monetary taking advantage of. This case flags up against H+B that prospect. No literal minded aspie can disagree with that. H+B stands under shadow of being a place of risk to go to, risk to more manipulable customers and insulting offence to all customers.

Until H+B stands nationally committed to blank cheque automatic backing of the wronged customer in absolutistly absolutistly every case ever. And H+B would not do this. Its customer services e-address, for which its website promises "we'll respond within 24 hours", never responded at all. Either to the first email warning that unless they gave the right answer I would repudiate my card and never go them, nor to the copy of the notice I handed in with my cut in half card to their biggest local shop. It's critical to civil liberty and not having controlled lives, that high handedness by shops must never exist and must never win.

Maurice Frank

Tuesday, July 5, 2011

nor the NHS, when it means catching you with hidden charges

Experienced today the surgery in South Queensferry trying to do this.

You go to see your GP about a medical enquiry he needs to write a letter about for you to show to a third party. There are lots of situations in which a public office might ask you to make such an enquiry, e.g. the council. When you go back to surgery later to collect the letter, reception tells you there should be a charge of £15 for it. Tells you it does not count as NHS work. You had been to your GP appointment in good faith as an ordinary NHS appointment. There is no publicised or displayed info saying otherwise.

In this case, nothing of this had been told to me at the appointment nor ever by the GP himself. The situation was even more irresponsible for it being left to word of mouth whether you were informed, and the receptionist herself having to ask doubtfully whether the the doctor had said it - and hence did not feel able to press the charge, so at least a small victory there. A frightened elderly patient without any self confidence might not be so lucky. But receptionist put in place a notice to expect charging for any future letters: and this interferes with something in mid stream. It may well not be the GP's fault either, but done undercutting his work, for his good helpful letter concluded, "If you require any further information please do not hesitate to contact me" - those are not words consistent with any idea of charging the reader for acting on them.

NHS Lothian complaints department made known that GP surgeries are now working semi-independently under contract and there are no consistent NHS rules on what they can charge for. Not very widely known to vulnerably trappable patients is it? I have made a complaint about the boundaries in any case like this, and about any charging when you go to your GP for health info that another public office wants from you.

Tuesday, March 1, 2011

some progress on social work

See post of 5 Dec 2010, update added to it. Not a lot of content in social work's answer but at least by defending that they are still talking about the personal case they admitted they have to do that. Have had a meeting with them at Waverley Court with opportunity to tell them more of the details.

Monday, February 28, 2011

Invitation to an autocratically restricted group's members to escape it and join us

Elas is open to all spectrumites who can reach us and want to, any radius, and we go visiting the aspie scene in other places too. All who want to link up with an aspie scene where folks communicate freely across region and groups are democratic and uphold personal wellbeing with everyone getting their say. That is the aspie scene we want, and folks beginning to network across Scotland want too, and all spectrumites with important stuff to say want it.

We extend a standing invitation to all folks on the spectrum who are unhappy with groups of a less free nature, to link up with us. Nobody must feel stuck in a group that is not the right type for them just by where they live. There is a disturbing case happening in an adult aspie group in a region near us.

There is a group where all the deciding power belongs to the chair and committee of a broader autism society also working with kids. The society set up the group, and in that society the chair, who until recently was also the founder, has always been the dominant leader, the committee following like sheep. So the group's members don't have their own direct say in how the group runs, what practices it follows. Imposed on them from above like that, as a "code of conduct", they are not allowed to communicate with each other, using contact info given in their contact list, for any other purpose than to arrange social meet-ups. Unlike Elas they never do arrange meet-ups, either: how can they feel close enough to each other to do that with all their contact censored? How is such a ban enforceable, it has been asked? Data protection law, designed to fight spam and junk mail, can be misused to set conditions like this to what types of messages folks consent to receive using their data. But in that group, the trap comes from how this rule was first imposed. It was announced to be in effect without advance notice, before its contents were even declared, and before the members had any chance to make known to each other their own consents to receive other types of messages. So they can't make that consent known to other members who have not already consented to them to have it made known to them, and who for the same reason can't make that consent known either. So any 2 members are trapped in a vicious circle of neither being allowed to open up closer terms of contact with the other.

Members have been cut off from each other, and from receiving info from outside the group by email from other members. The leader hence holds control of what they receive. This Orwellian rule was introduced openly for the purpose of preventing members discussing with each other anything going wrong with the group, without having to go through the leader. Needless to say they have no blog like this one: they have always been welcome to use this one but did they know? Consider too that in this now low attendance and socially dead group whose meeting last week was actually abandoned, it is clear that a large proportion of the contact list is of lapsed or ex-members, yet their ability to contact each other or the remaining members or be contacted by them remains under the same restraint. They have no say over it, if they even realise it is happening. Elas's response to the autism bill consultations contrasted that model with our open and decentralised model. Watch out for this if you are joining or visiting any aspie groups in central/south Scotland: do they follow Elas's model or the other group's?

The problem society has also appointed a spokesman for the ruling committee on all issues to do with the contact list and banned all contact with any other committee members about those. Are you keeping up? Layer upon layer of paranoia. No sensible thinker can feel safe in an organisation that behaves like that: like a cult, tying you up in gags on talking about what is happening to you and hogging all power to the leadership. How are we going to retrieve our fellow spectrumites entangled under these tricky controls they have never had proper opportunity to consent to? Is that the challenge to its legality that will break it? we have that committee spokesman already questioned thus. This should concern the whole rest of the scene in Scotland, the free scene as it may now be worth calling it.

2 members of Elas used to also belong to this other group, and as a part of Elas's far wider success in keeping socials going it used to have some contact established with one of the other group's members. All swept away now. That is really helpful in defending and growing the scene's wellbeing, eh?

The group's trouble began when a member X, volunteering at an ecology centre, recommended another member Y to do the same. When the ecology centre discriminated against Y for being a victim already and rejected him, X brushed it aside and defended the ecology centre's discretion to do it and refused to take any stand against it. Y as a result made a complaint that X should not do support work, including for teenagers, in that autism society, and the bully-hurt of being expected to endorse that as part of life in the society. He tried to overcome prolonged hurtful noncommittality from the leader and force the right outcome on its moral merits by an email to the group members. This issue could not even arise in an independently organised adult group like Elas that is not tied to a bigger society and/or to endorsing any support work. If an X/Y situation happened in Elas, Y could just cut off speaking terms with X and not be pressed about it, and could tell the story and be deemed the justified hurt party, and X might have the brass neck to stay around but would not impinge on Y's life in any way.

The problem society's committee has defended and sided with X, this being paired with the ban on members discussing its merits as justice, and answered an inaccurate rewritten version of Y's complaint with a pile of personal attacks on Y that making the complaint was aggressive and constituted not caring about anyone. This when Y had obviously cared about fair play in the ecology centre's community, and when they made no comment at all about what had happened to Y in a previous workplace.

They ranted like the Tea Party extremists in America who don't believe in autism at all, saying aspies must not lobby for any special treatment at all, and must take "life's disappointments" as they come without lifting a finger to anticipate and prevent an unfairly big share of "life's disappointments" or else they are to blame for "expecting problems." They defended X as "being realistic". These are a rejection and denial of the same organisation's whole history and all the care which the parents in it have argued with schools for and expected this society's support against getting labelled arguers or troublemakers. It contradicts the whole principle of a support scene and the whole idea of supported employment services like Intowork, it is a harsh right wing attitude that we should go back to sinking or swimming in a neocon economy geared to reject us, exactly like before we were known to need any different at all. The committee spokesman accompanied this with reckless defamation threats against Y making any outside criticisms of the society at all no matter what happens inside it: say anything to the outside world and you risk being criminalised and going to jail. (Yet defamation is civil law, he had not even realised.) More sinister behaviour like a cult, constituting an attempt to blackmail through fear and to enslave a person into a control trap and into fearful silence. It has no force: it is an established part of fair civil life that an organisation's ideas and practices can be criticised on merit, accountably to factual accuracy.

Now, you would think it is important to challenge every member of the committee on whether they are behind this or are spoken for by it. No no, can't have that - contact with the committee about it, except the spokesman, is also banned !!! How then does Y even tell anyone else in the committee if the answers to issues never raised show that the complainer has been wilfully misrepresented, hence defamed indeed, to the committee? If the spokesman can imtimidate the person he is writing to, like Y, like this, then the same intimidation hangs over any committee members who step out of line. This kafkaesque tangle of bans on who may contact whom and about what, has grown into a monster. It allows no way to find out whether all the committee are behind any decision or spoken for by any answer and no means for dissenters to be discovered or to advertise their own existence. In such a situation, to set out these obvious facts in public and not succumb to the undemocratic threatening into silence, is actively a duty of not defaming the committee members: any of them might not be behind the shockers hissed in their name and might be gagged and in fear. The only way to see that nobody is under control and in fear of speaking, will be when that whole society that has so tragically chosen power against long lasting friendships and by it has collapsed into this horrifying condition, breaks under the self-inflicted cumbersomeness of its own barminess and falls apart.

But all the innocent members in it must be able to get out without having the aspie scene lost to them, and to find refuge in the rest of the scene unintimidated and no longer obeying any of that cult regime over who they may contact. Join us, or use us as a base to bypass that controlling society and to reestablish your local scene in a form with free contact again.

Sunday, December 5, 2010

a letter sent from Elas to social work

To Michelle Miller, chief social work officer for Edinburgh.

We are the local group of Asperger and high functioning autistic adults, ELAS. Our support for each other includes speaking up concerning life dangers and sharing awareness of them. We are a voice heard by other services, against any of us coming to harm, getting exploited or manipulated, in positions of vulnerability.

Hence, we are alarmed to hear that social work services now deny that it is their role or their power, to intervene against any party putting us in positions of vulnerable harm, when this is outside any services run by social work itself. You say this in your letter of Nov 27 to our member Maurice Frank.

In society broadly, it is commonly known and understood that exactly this is the purpose of social work's existence. It is common knowledge when support issues are discussed in the autistic community on the web, that social work is the party who you are entitled to expect a response from to these situations. Its function is to prevent harm coming to anyone in any vulnerable position, anywhere in society, by responding on the evidence whenever evidence of ill treatment is raised. It is immaterial who runs the place where it happens.

If this ceases to be the case, then we directly ask: how are any of us ever safe, committally for certain, from bullying or discrimination or any ill-treatment in attending any service that claims to be suitable for us? All Asperger and HFA adults are classed as vulnerable. We will be endangered, in all services, if there is not defined to be any local authority to complain to with a committal automatic duty, standing accountable directly to the merits of evidence in each case that arises. This does not require you to act as other organisations' internal complaint investigator, but simply to make them do that completely and properly not corruptly, and you to take action if they defend any distressing or discriminatory practices.

You stated in your letter that the council has no role thus. The local coordinator of Choose Life confirmed that the council most certainly does have a role, as when an organisation falls under mental health she identifies a Mr John Armstrong, "joint programme manger for mental health", as having a responsibility. Yet you wrote that the council has no role at all. Do you stand by denying his function? The public would be very alarmed to know that contrary to such factual evidence, social work denies there is any obligation by the council towards autistic adults being exposed to ill-treatment in any services run by other parties than the council itself. They will recognise it as an abdication of function.

This ethical emergency now exists, gives us a duty to let all aspies know they are potentially left unsafe in any service and always have those grounds to give against using any service, unless in reply you are committal not noncommittal that social work's popularly known role is automatic not discretionary.

Update: Anyone who reads our letter can see that it was asking for a position on the safety of all aspies in using services, not an answer to a personal case. Yet social work sent us a brush-off reply saying just that they can't answer on a personal case because of confidentiality. So there is some more to know about them, they are willing to waste a month testing if we are stupid. So we wrote back, repeating that the general position for all is what we are seeking.

From our minutes, Feb 14 meeting:

"Social Work Correspondence
Another reply has been received to ELAS letters expressing concern about the way some social workers deal with people on the autistic spectrum, but sadly it was vague and non-committal in its wording."

The one good thing we extracted from them was a recognition of needing to continue talking to about the personal case. Previously they had been trying not to talk at all, so it is progress when the fact of talking becomes their defence. That is an implied acknowledgement of the need to intervene, which can be cited in other cases too - if folks know of it.