voicing into the autism strategy, so we must stay visibly organised

Facebook link for it coming soon. Already linked from the autism strategy's site by this link, because it is a document attached to the autism strategy. A grassroots sourced guide of what real life situations for aspies it has to address, for effectiveness of all services. Thus is the Autism Network Scotland's compilation An Ordinary Life Too. From many aspies in Scotland as contributors, and the editing team's membership overlapped ELAS.

That is what ANS has been about: grassroots input into the policy system for us. Scotland seems to be where this model is best developed in the world. In the 10 years it has run, it has succeeded as an experiment and a principle: proud to be part of that.

What a contrast with the failure rate, throughout Britain, for independently organised aspie local societies. Their number in Scotland is declining. According to an ELAS member who has observed the trend, "all over Britain AS support groups had started, and folded when their members were tired of one another." To get tired of the countrywide mass and scene of your fellow aspies is a really nasty thing to do and increases vulnerability. You don't get fellow aspies' empathy and understanding in NT society, dammit. Aspie Village keeps a national aspie scene in existence, but a successful networked scene of UNCORRUPT local societies, with constitutions tying them to standards of personal fairness and no instant or arbitrary rejections, and the standard protections of minorities, is what we need to stand up for ourselves at a practical level everywhere, and not be reliant on the arrogant self-interested NAS.

ELAS has just crossed a line of failure as a self-reliant independent group, as a dispute over honouring of ethics and fairness has made it cease to be possible to have an impartial and ethically spotless chair from within the group, and need to have Autism Initiatives workers take the chair. It is a milestone of scene contraction, that underlines the need for conscientious group fairness ethics at all times, to underpin all aspie societies. No excuse for anyone ever to assert toughly spoken brute views of reality and limits to willingness to adhere to fairness, or to claim there ever exists any reason for anyone's personal fainess to be sacrificed for a group's expediency - those are violations of vulnerability. When local societies are proper tied down ethically safe spaces, where all know that nobody, officeholders included, can get away with doing a dirty on you, then there is less motive for anyone to get tired of it. For the aspie scene and nationally networked community to be sustained, much less grown, it needs to be worthwhile, means reliably nice and caring, for the folks taking part in it. That's a no-brainer.

Fibromyalgia can co-occur with autism or in the same families at it, though curiously the gender balance of its prevalence is the reverse of autism's. Liaison with a friend with it has confirmed that its recognition as a disability is accurate and wanted, and brings really practical benefits and helps with establishing practical disability entitlements. So that this petition to class fibromyalgia as a disability picked up from another aspie contact, is worth your support. To share it is an example of practical good from a sustained aspie scene, from us caring not to tire of it !!

Fairness: the vulnerability law, What to expect

The law of vulnerable adult groups covers us ethically, it establishes that we must not be taken advantage of, financially, or emotionally, by anyone engaging in any type of support relation with us. Any support relation, that could be a formally employed or charity placed support or aspies showing each other support in the self organised scene.

Oh so nothing bad or hurtful ever happens in an autism service? ... obviously not so, but all bad happenings are breaches of vulnerability, the protection against them is there notionally and conceptually. Its enforceability in practice is what needs building stronger. The defined duty to vulnerability includes to prevent corruption, and what prevents corruption is transparency and accountability. So all losses of direct voice and accountability for aspies about service issues are breaches of the vulnerability law capable of contributing to suicidal feelings in persons made more vulnerable. Hence structures like ANS and regular participation in the autism local plans can never be taken away. ANS's imminent issue of a book compiled from a spread of ordinary aspie life experience, An Ordinary Life Too, will greatly strengthen the body of facts that establishes this. It will advance the accountability over uncorrupt protection of vulnerabilities, that comes from strengthening the claim of permanence upon these participative structures.

What does this mean you can expect in Elas, and any Asperger society self-organised independently from the problematic big charities?

• You are among folks who know it would be liably against the vulnerability law ever to turn socially corrupt and backstabbing to escape from answering a fairness issue, like the former Phad charity in Fife did which led very quickly to its break-up and demise in 2011 a bad outcome for all.
• Fairness is never an obsession. Fairness is never called an obsession, because fairness is a red line ethic, and red line ethics are never obsessions.
• For any fairness issue in your life that affects your relationship with any other members, e.g, something which their own invitation involved you in and resulted in an unfairness.Your pursuit of it, time unlimited, will automatically have the reliable solidarity and backing of the rest if the group. No one will ever dismiss it as an autistic rigid thought pattern or obsessive.
• You will never accidentally catch any member doing that when they think you are out of hearing. You will never be let down by a friend with a long back period of discovering this way that they were never real.
• You will never find the group dug in to stay noncommittal about your fairness issue.
• You will never see this include a member refusing to reverse a serious mistake that had worsened the wrong, such as the mistake of apologising to the party that wronged you after being lied to by them.
• You will never see the group suspend a normal routine of going for a drink after meetings, and instead all hasten home uncomfortably, by reason of wanting to avoid the issue.
• You will never hear anyone express in blunt words and a cutting tone of wordly-wise macho boredom the emotionally abusive view that you may have to live with a social injustice unsolved.
• You will never hear anyone argue that fairness to you should fall in the greater interest of the group.
• You will never find that the group get sick of the subject and start to sanction or socially reject hearing about it, when that leaves you with them expecting you to live in acceptance of it.
• You will never hear anyone use the word "unfortunately" as a weapon for any of these maltreatments of you.
• You will never see another member continue to belong to, and hear him keep mentioning its place in his social life, anything which has wronged or unjustly excluded you, if he has said nothing about efforts on your behalf to change that. Particularly if his own invitation had led to the wrong happening in the first place.
• You will never have anyone believe that you should live in acceptance of, and stop fighting, a wrong which has not happened to them.

These are not points that any autism group, any group in any support scene, can discuss and decide not to accept. You will not suffer these things because the group will ensure conscientiously that each other know, that it would break the vulnerability law, with many potential lines of liability, for any of them to exploit anyone's vulnerability by doing any of these unfair unsupportive things to them. They are all acts of emotional abuse, for they betray and kick away wellbeing and result in exclusion experience. Hence they all risk, as is well established illegal, well-motivating suicides by it. They are all actions whose breach of the vulnerability law is serious enough that they risk life. The members of every aspie group have a duty to ensure each other's awareness of this, to be vulnerability compliant.

You do not have to be a suicide risk to have this protection, e.g, you may be articulate enough with writing to fight back, but the group will know that if they wrong you they cause suicidal ideation in a less articulate person who sees it happen and encounters any similar wrong, now or later. So, because the group dares never wrong that person, they dare never wrong you either. Backing for total literalist fairness is your claim of right.

Maurice Frank

a famous aspie does not mean all is right for us.

Let's see. You've come for a look at what aspies are all about because you heard the news about Susan Boyle? Splendid: here's what the media should be telling you. Are they?

• Our heightened physical sensitivities, including to fabric and heat, are biologically incompatible with dress codes and make them an assault on our physical wellbeing. Our existence abolishes all work dress codes and school uniforms. This has been known for years and the big charities have not been choosing to push it.
• Because some aspies find it easier to focus on the written word than the spoken, there is a correlation between aspies and child authors. There is a succession of books by aspie child authors, and there is a child cruelty offence done in long history of big charities' total avoidance and failiure to publicise that there are WRONGED child authors, like me, whose chance to write was destroyed by harmful school pressures and homework.
• With the big charities' big failings to speak for us where needed, you can see how seriously we have needed the voice developed for us, to contribute into professional awareness and policymaking, by the AUTISM NETWORK SCOTLAND, developed out of Strathclyde University and now a part of the national strategy. It's invaluable, and its creation is the great success of the scene in Scotland. So IT NEEDS COPYING IN EVERY COUNTRY. If you are outside Scotland do you think your aspies deserve not to have any ANS?
• The NAS is to be complimented on attending properly to striking off its contact list a bent autism legal service that advised me to surrender in a dispute with a council tax malpractice where I was in the right by statute law and won. There needs to be a media consumer exposee of bent services that will prey on their clients instead of stand up to councils - you want to know more, you need it publicised.
• Likewise you want to know that aspies' local groups can't be corrupted and seized control of by malpractisers bent on hushing up emotional abuses, as happened to a group near us, defunct since stood up to by an earlier post on this blog describing its malpractises: 28 Feb 2011, Invitation to an autocratically restricted group's members to escape it and join us.
• It's only the same common sense that all the details should be published of the ways we have been harmed by schools and by child psychiatry. Aspie kids not safe until these things stopped, and how do you stop them unless you have heard widely what they are? In a safely non-deletable way on paper: for it's no good putting them in an Amazon e-book where the site's lawyers reserve a power to turn round and say, no no no, delete to be on the safe side. So the media are turning their backs on child safety unless they read this and chase after these things' publishing.
• Where competitive jobsearch utterly has never worked for us, the approach that works is to have aspie employment services who talk through both our strengths and our limitations with an employer to work out a working niche for us. But more ethical accountability upon these services is needed, to prevent the malpractice of them turning round and claiming that a third party problem that arises after you are in a job is not in their remit to deal with. By obvious definition, a remit to support employment automatically includes any problem that affects the work's doability or the work environment's justice in any way. This an item I am holding Edinburgh's new local Autism Plan responsible to put right locally.

Maurice Frank

Safety of your own property

Even the Autism Services Network, whose meetings' accessibility for us in the east is affected by Citylink's practices, have not received a word of answer, been completely ignored by Citylink. Even a project working with government funding.

Folks need to be warned against travelling anywhere by Citylink, on a free bus pass, outside the main population belt, off the frequently bus served roads. It is operating an arrogant policy of seizing bus passes from passengers without their consent, either if they don't work on the scanners or if the photo is eroded. Some weeks ago I saw it happen to an old couple not even at the point of boarding, when they might have a chance to grab the pass back out of any thief's hands, but in mid journey at the hands of an inspector. They were on their outward journey of a holiday and concerned about the effect on their return journey, and the coach was in remote country at the time, where if thrown off it for not cooperating they would have no other means of travel.

Citylink when complained to called this a "policy" and made not a word of admission of folks' right to hold on to their personal proerty. They even denied it would be violence for a driver to steal a pass and refuse to give it back.

Folks known to Elas through Number 6 have had it done to them and not had their new pass arrive in time before the temporary paper pass they were given expired, which is only a week. With the onus on you to apply for as new pass, you could very easily not have time to do it in time if you are on the outward journey of a holiday.

THIS IS A DANGER TO PERSONAL PROPERTY. That it can be stopped is an absolute test of the autism strategy's efficacy. Maurice Frank

Covering ground

It matters to be an independent group that runs itself, not tied to any council funding nor run by the big charities. It matters because to be a genuine voice in what you say. But there is a very clear top reason why it matters, which Elas is living now. It means we are free to have no territorial boundary.

Elas has been the core of making a string of successful meet-ups happen all round the Central Belt, as recently at Perth and Paisley. In them we have put face to face reality to personal links made beyond our own region, in 2 ways.

• So that aspies within reach of us have joined us, who have no similarly independent group running in their localities: our filling of that void has been right and made a needed practical difference in several cases.
• Or, so that folks in those places where a new venture can start up cautiously, that is independent like us, can use us as a reference point and a friendly link to meet up with and share with. Supporting the free aspie scene to take root in new ground.

We can do this because nobody's office is in a controlling place to tell us to only serve folks inside a defined boundary line. Number 6 and its Glasgow counterpart the Arc have not been allowed to succeed in the same way, as what would be a good part of their service. By their state funding to serve particular councils or health regions, they have been tied into functioning only inside territorial boundaries. Of NHS Lothian's region, or of the terribly arbitrary Glasgow city boundary that is smaller than the physically real city and is often just flung between 2 houses in long streets of unbroken habitation, causing division and exclusion and pain as we have heard when visiting the West. The autism strategy is now to extend Number 6 type services to everywhere, but presumably they will still each be little islands whose users are separated from each other by boundary lines. It still won't be a cross-regional scene for folks in places of well developed service to help out folks in places of rudimentary service. But aspies organised independently to meet up can be that.

Now we hear of a new group in Stirling with the council paying Scottish Autism to run it. This arrangement again ties it to only serve the territorial boundary of Stirling, We have seen this result in exclusion from that local scene, in time of need, be experienced when resident in an adjoining council area, clearly inside the radius of having Stirling as a focal place. Incredibly ironic of SA to accept deals like this to run groups, when its own head office is in Alloa, one of the places this group is barred from serving.

In common sense care for the participants, SA should want this arrangement to be as temporary as possible. The folks in Stirling need their group to evolve to the model of running independently same as us, and as Argh in the Highlands. So that it can include folks' friends in Alloa and all the places around there regardless of what council they are in, and so it can make the same non-local links as us, maybe including with us, and be part of the growth of a speaking out scene that covers everywhere. Local groups don't need funding to exist, members just need to agree a place to meet up that does not involve expensive room booking and they are all comfortable with. Local groups by contact and meet-ups, and by folks crossing region to belong to whichever group they feel best in, helping each other to make the scene cover everywhere, is the vision. We are already starting to make this happen. It also protects our freedom everywhere to speak on problems with services and to have blogs like this, when what we want to say goes well beyond what the big charities want to say.

Remember another way these links massively importantly protect our free voice, and indeed our personal links and friendships. By our links with each other in different places we will all safeguard each other against getting trapped by any authoritarian takeover in any group, like the cautionary horror story of what happened to a group in a region adjoining us, that was run by a bigger society whose committee suddenly passed Orwellian cult-like rules misusing data protection to ban members from speaking freely to each other, before they had even had the chance to consent to this being put in place, so that it interfered in communication between friends and cut folks off from each other. A sinister story I told here a year ago, it is time to remind ourselves of it. In fact the group concerned has remained suspended from meeting ever since then, supposedly temporarily, which is now a farce. It is a clearly failed and destructive outcome to how to run a group. Compare that with the success of the total opposite model, the free model, ours.

The folks who were in that group, now unjustly adrift without an aspie scene, or who have been in any type of controlled group, have a need to find the scene all over again, but our free scene of independent groups that all support each other's members in keeping it the free scene.

Maurice Frank

Don't let the council make it up as it goes along

From Local Government Finance Act 1992 section 81, which creates the power of council tax appeals in the Act's Scottish section:

(1) A person may appeal to a valuation appeal committee if he is aggrieved by -
(a) any decision of a local authority that a dwelling is a chargeable dwelling, or that he is liable to pay a council tax in respect of such a dwelling.
(b) any calculation made by a local authority of an amount which he is liable to pay to the authority in respect of council tax ....

From www.scotland.gov.uk/library3/localgov/ctha-00.asp "What are the grounds for appeal?"

• If you disagree with the levying authority's decision that your dwelling is chargeable,
• if you disagree with the levying authority's decision that you are liable to pay the council tax in respect of a particular dwelling, or,
• if you disagree with the calculation of your bill

You can check out the full act yourself. It states simply and clearly that if you want to appeal any disagreement you have with the calculation, any error that you personally perceive in it, you are absolutely entitled to do that. That power of appeal is written literally in the law. As aspies know, what is literally said is what is said. In the written law and the public info on it there is absolutely nothing, not a word, that says the council ever has any power to say that it refuses to recgonise your appeal's existence or to carry it out as a case, on grounds of its view of your appeal's merits. It has no power whatever to say, we don't think this is a "relevant" subject for an appeal so by our say-so you are not getting an appeal held.

It follows that it has no power or entitlement further to threaten to take you to court unless you acquiesce to this. You would then be under threat of legal penalties precisely for following exactly what the law says!! It would not be possible to rely on any law as literally meant, or to know that following it means less trouble than not following it. A system of law would not be operating, arbitrary terror would be operating instead, if a council was ever upheld in behaving this way. Over council tax appeals or over anything else ever.

The duty that public bodies have to communicate fully and effectively with us, especially with us because we come under disability equality, rules out the council inventing rules of its own that are not there in the rules issued to the public, of a nature as to let it conveniently suppress appeal cases lodged against its own actions - and for it to claim to enforce what it has invented while ignoring the actual position.

More info from within the scene:
Autism, as a recognised disability, implies a number of rights in court settings. Probably the relevant one to follow up here is to have an ‘appropriate adult’ to provide support. The courts will generally take a helpful and sympathetic view of how to help people who are vulnerable or have disabilities, so long as they are primed beforehand to understand the situation. Often what happens with autism is that there is insufficient prior knowledge provided regarding what the problems are, and the person may present superficially as not having any particular disability.

Statutory rights are conferred by the UN Convention on the Rights of Persons with Disabilities, of which the UK Government is a signatory. These include a number of general principles and obligations in relation to equality and non-discrimination (Articles 3-5), and the requirement for States to take appropriate measures to provide access by persons with disabilities to the support they may require in exercising their legal capacity (Article 12), and to ensure effective access to justice for persons with disabilities on an equal basis with others (Article 13).

The principle is that to provide an ‘equal basis’ a person with a disability requires such measures as will provide a level playing field with people who do not have a disability.

Written straight after a meeting with the council, that had to be lobbied for before it could be held!! about a dispute of this nature.

Maurice Frank

now uniforms take life, preventably

Many papers today carry a child death story that challenges anyone willing to persist in believing there is any good at all in the physical world. In the Australian floods, a boy aged 13 was swept away and killed, along with his mum, when the floodwaters swamped their car, the reason why they narrowly missed rescue by a truck driver was because this boy made said rescuer save his younger brother first !

Now, there is more to this horror than accident. Here is the twist to make you angry, that adds to this story an element of human evil which our scene could have prevented: quoting from the Metro's story, "Ms Rice and her sons were returning from a trip to buy school uniforms when they were caught up in what police called an "inland instant tsunami."""

This is a child's life actually ended, entirely by reason of the prison badge of children's enslavement, and the obligation on families to actually buy with their own money the chains of their own oppression. To make this purchase mattered enough to go driving in the middle of a flood crisis for specifically this purpose, to buy a degrading slave costume whose communist purpose as openly declared by the nutty professor - see last post - is to airbrush away children's personal identity and give physical form to a state of possessed subjection.

For a century we have been told school uniforms do all these wonderful things. Anyone who defends them now is seen to defend costing lives and intentionally to be willing to cost more lives, and this is for a purpose of destroying liberty.

This includes any big autism organisation that continues not to speak out against them, and against all uniforms ever, as they owe to adult workers too. For years the big organisations have known this need exists. For years they have kept themselves on hobnobbing terms with employers and teachers. This boy most likely was not one of us, and there is no need for him to have been. Remember, acting on aspies' biological needs will get rid of uniforms, not just for aspies, but for everyone. If the big autism organisations had done this, then thanks to autism knowledge, uniforms could have been eradicated all over the democratic world years before now, for everyone. Then, by the reported facts, this family's fatal car journey would not have happened.

This be on the head of all limits to publishing of facts, all control and filtering of issues, that has existed in the autism scene. In the media too.

Meanwhile, yesterday, here, parliament threw out Hugh O'Donnell's bill for an autism strategy, at first stage, by 109 votes to 5. I watched them in the public gallery, all jumping on the momentum to say oh it's not proven what difference this would make oh we need less obligations for service users to run around trying to enforce and we need more time muddling along as we are. The way they seized on the committee report to criticise the bill for being too noncommittal! is an irony howling against the way all law is practised at present. All of them every day are in the political class's game of always being noncommittal, and now they have damned a bill for the same thing.

It is an indictment of the NAS for its insistence on legalese drafting of the bill. In the consultations last year, we put in for using ordinary language, and through it, for having some committality about what the bill would definitely make happen. The NAS have dominated this entire campaign, and their aversion to committal obligations to any issues that come from us to them, has delivered this rubbish outcome for them and us alike.

Maurice Frank